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Rare Disease Day 2021: Recognizing the Superheroes Among Us

Each year, we honor Rare Disease Day on the last day of February to show our solidarity with those whose lives are impacted by rare diseases every day. While the 14th annual Rare Disease Day was recognized virtually this year, it was just as important and meaningful as those in years past. Recently, we have celebrated many people for their heroic actions as they have served on the frontlines of the global pandemic. This renewed recognition of those who dedicate their lives to serving others inspired the Homology team to think about the countless superheroes who are active in the rare disease community – and how we can do our part to honor them. To recognize Rare Disease Day this year, we partnered with TinySuperheroes, an organization that empowers children who are overcoming an illness or disability. Specifically, Homology sponsored 50 children living with rare diseases who received a personalized superhero cape to acknowledge their bravery. Leading up to Rare Disease Day, the Homology team and their families wrote motivational letters and crafted superhero-themed artwork to be included with each child’s cape and a special Rare Disease Day patch. Partnering with an organization that represents children who live with many different rare diseases enabled us to learn more about diseases beyond those that we focus on each day at Homology. By taking the time to recognize these courageous children, we were inspired and reminded of the superhero powers they exemplify each day living with a rare disease. If you would like to sponsor a cape by making a personal donation to TinySuperheroes you can do so here.
Theresa McNeely Chief Communications Officer and Patient Advocate 781-301-7277 Media Contact: Marisa Citrano Corporate Communications Associate 617-335-2841